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Herring v. U.S. Amicus Brief Filed
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A Mixed Blog - From The Editor
Written by James A. Landrith   
Friday, 16 May 2008

Today, a group of 27 legal scholars and technical experts and 13 privacy and civil liberty groups filed an amicus brief with the United States Supreme Court in the case of Herring v. U.S.  The Multiracial Activist (TMA) was among the signers of this brief.

From the Electronic Privacy Information Center on this case:

In Herring v. US, the police searched and then arrested Bennie Dean Herring based on incorrect information in a government database. He was illegally arrested and searched even though he told the officers that there was no arrest warrant, and no officer had seen or could produce a copy of the arrest warrant.

After he was indicted, Herring petitioned the district court to suppress the evidence gathered incident to his unlawful arrest, arguing the exclusionary rule prevented the use of such evidence. But the district court rule against him. Herring then appealed to the Eleventh Circuit Court of Appeals, which affirmed (pdf) the district court's ruling. Herring then petitioned for cert. to the US Supreme Court. The US Supreme Court agreed on February 19, 2008 to consider the case and decide whether to suppress the evidence obtained.

The heart of this case speaks to the dangers of information sharing, domestic surveillance and centralization of public and private data in federal hands, something TMA has been quite vocal about in the past:

There has been an increase in information sharing not just among government agencies, but between federal, state, local, tribal and commercial entities. In October 2005, President George W. Bush issued Executive Order 13388 (pdf), which created the Information Sharing Environment among these many entities. An outgrowth of this has been "fusion centers," which have received $380 million in federal grants and millions more from state governments. There are 43 current and planned fusion centers in the U.S., and some states have more than one, according to (pdf) the Congressional Research Service. The expansion of fusion center goals and increasing interaction with federal and private sector entities leads to a massive accumulation of data, raising questions of possible misuse or abuse. The Department of Homeland Security (DHS) seeks to create a "national network" of local and state fusion centers, tied into DHS's "day-to-day activities." This national network combined with the Department of Homeland Security's plan to condition grant funding based on fusion center "compliance" with the federal agency’s priorities inculcates DHS with enormous domestic surveillance powers and evokes comparisons to the publicly condemned domestic surveillance program COINTELPRO.

You can explore the links below for more information on this important legal effort. 

Relevant Links:

EPIC Herring v. U.S. page:  http://epic.org/privacy/herring/

The Multiracial Activist:  http://www.multriacial.com

Amicus Brief filed today: http://epic.org/privacy/herring/07-513tsac_epic.pdf

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25 NATIONAL ORGANIZATIONS URGE PRIVACY IN E-PRESCRIBING
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The News - Press Releases Sent By TMA and Coalition Partners
Written by Coalition   
Tuesday, 13 May 2008

FOR IMMEDIATE RELEASE

CONTACT:

Ashley Katz

Patient Privacy Rights

(512) 732-033 or (512) 897-6390

This email address is being protected from spam bots, you need Javascript enabled to view it This e-mail address is being protected from spam bots, you need JavaScript enabled to view it

www.patientprivacyrights.org

25 NATIONAL ORGANIZATIONS URGE PRIVACY IN E-PRESCRIBING

What Could Be Scary About E-Prescribing? Plenty.

Washington, DC – Twenty five organizations, including the ACLU, the Republican Liberty Caucus, the American Council for the Blind and the National Association of Social Workers joined forces via the Coalition for Patient Privacy to urge Congress to include privacy protections in any federal electronic prescribing legislation. Read the Coalition’s letter to Congress here.

What is scary about e-prescribing? Much more than you might think. Today, plenty of private corporations and employers have access to Americans’ private prescription use that includes individually identifiable data. Deborah Peel, MD, Founder of Patient Privacy Rights and leader of the Coalition explains the need for privacy with e-prescribing, “Our current system allows every prescription in the United States to be data mined and sold. This has been the reality for over a decade. You cannot keep a prescription private in the U.S. or stop your data from being sold, even if you pay cash.” This practice is completely compliant with the Health Information Portability and Accountability Act (HIPAA).

While e-prescribing is attractive to many, Americans do not want their private prescription information data mined and used without their permission. Many Americans would be quite alarmed to discover their employer and others know they take an anti-anxiety medication or that they are being treated for an STD. West Virginia is a perfect example: when state employees recently learned that Express Scripts was selling their prescription records to data miners, they were outraged. Express Scripts promptly agreed to stop this practice when faced with losing 200,000 customers.

Some argue the e-prescribing bills do not change anything. While the fact that the U.S. has a systemic, extensive system for prescription data mining and sale is NOT a secret anymore, the Coalition argues that now is the ideal time to end this unethical use of our private prescription records. When you know something bad is happening, that is the time to stop it. “Would you sit there and watch a house burn down, or let somebody bleed to death before your eyes and do nothing? Or would try to stop those harms?” asks Peel. “Now that we know beyond a shadow of a doubt that the systemic theft and misuse of personal data is occurring, why wouldn’t we do all we can to stop it now, starting with e-prescribing?” Members of the Coalition for Patient Privacy actually see this debate as a golden opportunity to ensure both progress and privacy.

The Coalition for Patient Privacy recommends the following basic principles in any eprescribing legislation:

  • include a right to health information privacy (the right to control access to personal health information);
  • require that any prescription data transmitted via e-prescribing be used only for the express purpose of prescription filling and submitting the necessary codes to the insurer for payment;
  • include a provision requiring prompt notification of privacy breaches;
  • include a provision that creates meaningful penalties and enforcement mechanisms for violations detected by patients, advocates and government regulators;
  • include provisions enhancing the security of e-prescription data such as encryption when data is transmitted, stored or retained in any storage and retrieval systems, including access devices, readable cards or other methods;
  • ensure physicians who decline to use e-prescribing are not penalized;
  • ensure transparency by requiring annual reporting to patients listing everyone who has accessed their prescription data;
  • include a provision ensuring stronger state privacy laws are not pre-empted;
  • require reporting of privacy complaints to the Centers for Medicare and Medicaid Services (CMS);
  • require CMS to provide an annual report to Congress on privacy complaints made; and
  • ensure prescription technology allows those with disabilities to be able to use eprescribing tools efficiently and effectively.

The Coalition for Patient Privacy

American Association of People with Disabilities www.aapd.org

American Association of Practicing Psychiatrists

American Association of Small Property Owners www.aaspo.org

American Civil Liberties Union www.aclu.org

American Council for the Blind www.acb.org

American Psychoanalytic Association www.apsa.org

Citizens for Health www.citizens.org

Confederation of Independent Psychoanalytic Societies www.cipsusa.org

Consumer Action www.consumer-action.org

Consumers for Health Care Choices www.chcchoices.org

The Cyber Privacy Project

Electronic Privacy Information Center www.epic.org

Equal Justice Alliance www.EqualJusticeAlliance.org

Fairfax County Privacy Council www.fairfaxcountyprivacycouncil.org

Gun Owners of America www.gunowners.org

Just Health www.justhealthnow.org

Liberty Coalition www.libertycoalition.net

The Multiracial Activist www.multiracial.com

National Association of Social Workers www.socialworkers.org

National Center for Transgender Equality www.nctequality.org

Pain Relief Network www.painreliefnetwork.org

Patient Privacy Rights www.patientprivacyrights.org

Private Citizen, Inc. www.privatecitizen.org

Republican Liberty Caucus www.rlc.org

Tolven, Inc. www.tolven.org

 

The Coalition for Patient Privacy first formed in 2006 and represents millions of Americans. Dr. Peel leads the Coalition and is the founder of Patient Privacy Rights, a national consumer health privacy watchdog organization based in Austin, TX.

Background Material

The elimination of consent for health records

The millions of individuals and entities who legally have rights to your personal information

###

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Last Updated ( Thursday, 15 May 2008 )
 
E-Prescribing Letter to House and Senate
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Advocacy and Letters - Letters to Government Agencies Signed by TMA
Written by Coalition   
Sunday, 11 May 2008

May 11, 2008

Honorable Max Baucus (D-MT)
U.S. Senate
Chairman, Senate Finance
511 Hart Senate Office Building
Washington, D.C., 20510-2602

Honorable Charles Grassley (R-IA)
U.S. Senate
Ranking Member, Senate Finance
135 Hart Senate Office Building
Washington, DC 20510-1502

Honorable Charles B. Rangel (D-NY)
U.S. House of Representatives
Chairman, Ways and Means
2354 Rayburn House Office Building
Washington, D.C., 20515-3215

Honorable Jim McCrery (R-LA)
U.S. House of Representatives
Ranking Member, Ways & Means
242 Cannon House Office Building
Washington, D.C., 20515-1804

Honorable John Dingell (D-MI)
U.S. House of Representatives
Chairman, Energy & Commerce
2328 Rayburn House Office Building
Washington, D.C., 20515-2215

Honorable Joe Barton (R-TX)
U.S. House of Representatives
Ranking Member, Energy & Commerce
2109 Rayburn House Office Building
Washington, D.C., 20515-4306

Re: Electronic Prescribing Legislation

Dear Member:

The Coalition for Patient Privacy urges you to include privacy protections in any measures supporting or mandating electronic prescribing. While e-prescribing is attractive to many, we can also state affirmatively that Americans do not want their private prescription information data mined and used without their permission. The Coalition urges you to insure any e-prescribing legislation recognizes Americans’ right to health privacy and prohibits the use of prescription data for purposes other than prescription filling.

Our current system facilitates the daily data mining and sale of every prescription from all 51,000 pharmacies in the United States. This has been the reality for over a decade. You cannot keep a prescription private in the U.S. or stop your data from being sold. Even paying cash will not stop the sale of your prescription information.

Mandating e-prescribing without privacy provisions endorses and encourages the current practices. It sets Americans up for even greater violations of their private health records in the future.

We encourage you to seize this golden opportunity to insure progress and privacy.

How would you feel if your prescription regimen was emblazoned on your shirt for the entire world to see? Did you know that the primary purchasers of prescription records are insurers, drug marketers and employers? What kind of judgments would be made if others knew you took an anti­depressant, a cholesterol-lowering, an anti-anxiety or weight loss medication? What about medicine for a sexually transmitted disease? If you are a diabetic, do you want to be bombarded by unsolicited mail about new diabetic drugs or want your doctor to be pressured to change your medications? Or would you rather discuss that private matter with your trusted doctor?

Clearly, Americans want to keep matters related to their health between themselves and their health care professionals. Americans do not want their private prescription information data mined or made public. All Americans want is to get the prescriptions and treatment they need -­ safely and privately. In late 2007, the state of West Virginia and Express Scripts learned the lesson the hard way. When the 200,000 state employees learned their prescription records were being sold to data miners, they were outraged. Express Scripts promptly agreed to stop this practice when they were faced with losing 200,000 customers.1

The Coalition for Patient Privacy recommends the following basic principles in any e-prescribing legislation:

  • include a right to health information privacy (the right to control access to personal health information);
  • require that any prescription data transmitted via e-prescribing be used only for the express purpose of prescription filling and submitting the necessary codes to the insurer for payment;
  • include a provision requiring prompt notification of privacy breaches;
  • include a provision that creates meaningful penalties and enforcement mechanisms for violations detected by patients, advocates and government regulators;
  • include provisions enhancing the security of e-prescription data such as encryption when data is transmitted, stored or retained in any storage and retrieval systems, including access devices, readable cards or other methods;
  • ensure physicians who decline to use e-prescribing are not penalized;
  • ensure transparency by requiring annual reporting to patients listing everyone who has accessed their prescription data;
  • include a provision ensuring stronger state privacy laws are not pre-empted;
  • require reporting of privacy complaints to the Centers for Medicare and Medicaid Services (CMS);
  • require CMS to provide an annual report to Congress on privacy complaints made; and
  • ensure prescription technology allows those with disabilities to be able to use e-prescribing tools efficiently and effectively.

The future impact of greatly expanding the electronic transmission of our private prescription records without privacy will undoubtedly result in a vast array of unintended consequences. Those consequences may include breaches of private information and ultimately discrimination based on illness or genetic risk of disease.

The Coalition for Patient Privacy cannot stress enough the opportunity before you to avoid exacerbating the invasive data mining practices. You have the perfect opportunity to stand tall for privacy, efficiency and quality. Your constituents and the American public will be grateful for your forward thinking. We look forward to working with you and your staff on this issue.

 

Sincerely,

 

The Coalition for Patient Privacy

American Association of People with Disabilities www.aapd.org

American Association of Practicing Psychiatrists

American Association of Small Property Owners www.aaspo.org

American Civil Liberties Union www.aclu.org

American Council for the Blind www.acb.org

American Psychoanalytic Association www.apsa.org

Citizens for Health www.citizens.org

Confederation of Independent Psychoanalytic Societies www.cipsusa.org

Consumer Action www.consumer-action.org

Consumers for Health Care Choices www.chcchoices.org

The Cyber Privacy Project

Electronic Privacy Information Center www.epic.org

Equal Justice Alliance www.EqualJusticeAlliance.org

Fairfax County Privacy Council www.fairfaxcountyprivacycouncil.org

Gun Owners of America www.gunowners.org

Just Health www.justhealthnow.org

Liberty Coalition www.libertycoalition.net

The Multiracial Activist www.multiracial.com

National Association of Social Workers www.socialworkers.org

National Center for Transgender Equality www.nctequality.org

Pain Relief Network www.painreliefnetwork.org

Patient Privacy Rights www.patientprivacyrights.org

Private Citizen, Inc. www.privatecitizen.org

Republican Liberty Caucus www.rlc.org

Tolven, Inc. www.tolven.org

 

cc:           Every Member of the U.S. Senate Every Member of the House of Representatives

 

For additional information please contact:

 

Deborah Peel, MD

Founder & Chair

Patient Privacy Rights

(O) 512-732-0033

(C) 512-970-9007

This email address is being protected from spam bots, you need Javascript enabled to view it www.patientprivacyrights.org

 

1 http://wvgazette.com/section/Opinion/200711265

 

“Anyone today who thinks the privacy issue has peaked is greatly mistaken…we are in the early stages of a sweeping change in attitudes that will fuel political battles and put once-routine business practices under the microscope.” Forrester Research

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Last Updated ( Thursday, 15 May 2008 )
 
Electronic Border Searches: An Open Letter
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Advocacy and Letters - Letters to Government Agencies Signed by TMA
Written by Coalition   
Thursday, 01 May 2008

Electronic Border Searches: An Open Letter

May 1, 2008

Chairman Bennie G. Thompson
Ranking Member Peter T. King
United States House of Representatives
Committee on Homeland Security

Dear Chairman Thompson and Ranking Member King:

We are writing to urge the House Committee on Homeland Security to hold hearings on the Department of Homeland Security's practice of searching and seizing Americans' digital information and electronic devices at U.S. borders. We also urge you to consider legislation to prevent abusive search practices by border agents and protect all Americans against suspicionless digital border inspections. In a free country, the government cannot have unlimited power to read, seize, store and use all information on any electronic device carried by any traveler entering or leaving the nation.

This issue is particularly critical in light of the Ninth Circuit Court of Appeals' recent decision in United States v. Arnold, which permits customs officials to search laptop computers at the border without any suspicion or cause.1 Despite reassurances that border patrol agents are well trained and supervised,2 the public has been unable to learn through open government laws which policies and procedures Customs and Border Patrol (CBP) has in place to protect travelers against arbitrary or abusive searches. Therefore, Congress must exercise oversight to ensure that border searches are not overly invasive or discriminatory, and establish appropriate safeguards to protect any information collected and maintained by the government.

  • This concern is real. The press has reported disturbing stories of travelers whose electronic devices were seized by the government as they crossed U.S. borders. Ellen Nakashima, Clarity Sought on Electronic Searches, Washington Post, Feb. 7, 2008, at A1. In each case, the traveler, a member of an ethnic minority, was detained, and his or her digital device taken by a government agent. In two cases, the digital devices were password-protected corporate laptops.
  • The government's "profiles" are arbitrary. CBP has said that "suspicious" travelers include men traveling from Asia between the ages of 20 and 59, a category so broad as to be meaningless. See Editorial, Looking into Laptops, Los Angeles Times, Nov. 11, 2006.
  • The government will not tell the public what it is actually doing. Numerous Freedom of Information Act requests have been filed to learn more about the government's policies and procedures for conducting electronic border searches. Unfortunately, agencies have been slow to respond and have refused to turn over a great deal of important information. This is particularly troubling when CBP is solely responsible for protecting travelers' civil liberties at the border.
  • Everyone's privacy and security are at stake. Your information may be compromised even if you don't travel yourself. The Association of Corporate Travel Executives has warned its members to consider the implications of traveling with confidential corporate information such as personnel records. American law firms that represent companies with offices in other countries are also concerned about their clients' confidences. Any individual's laptop can hold vast amounts of personal information such as financial records, confidential information related to business dealings and client relationships, and communications with friends, family and business associates. Allowing the government unchecked access to such information not only violates privacy and security, but also chills free expression.

The Fourth Amendment protects us all against unreasonable government intrusions. But this guarantee means nothing if CBP can arbitrarily search and seize our digital information at the border and indefinitely store and reuse it. We urge the Committee to hold swift hearings on the Department of Homeland Security's border search practices and consider legislative action to ensure that Americans' electronic devices are not subject to abusive, arbitrary or suspicionless searches at the borders.

For additional information, please feel free to contact Electronic Frontier Foundation Senior Staff Attorney Lee Tien at (415) 436-9333 x. 102.

Sincerely,

9/11 Research Project
American Association of University Professors
American Booksellers Foundation for Free Expression
American Civil Liberties Union
American Immigration Lawyers Association
Asian Law Caucus
Association of Corporate Travel Executives
Professor Matt Blaze, University of Pennsylvania
Business Travel Coalition
Center for Democracy and Technology
Center for Digital Democracy
Susan Landau (Sun Microsystems, for informational purposes only)
Liberty Coalition
Minnesota Coalition on Government Information
The Multiracial Activist
Muslim Advocates
National Association of Criminal Defense Lawyers
National Center for Transgender Equality
National Coalition Against Censorship
Citizen Outreach Project
Defending Dissent Foundation
Whitfield Diffie (Sun Microsystems, for informational purposes only)
Electronic Frontier Foundation
Electronic Privacy Information Center
EnviroJustice
Equal Justice Alliance
Fairfax County Privacy Council
Feminists for Free Expression
Lauren Gelman, Executive Director, Stanford Law School Center for Internet and Society
Identity Project
PEN American Center
National Workrights Institute
OpenTheGovernment.org
People For the American Way
Republican Liberty Caucus
Professor Ronald L. Rivest, MIT
Professor Aviel D. Rubin, Johns Hopkins University
Rutherford Institute
Professor Fred B. Schneider, Cornell University
Bruce Schneier
U.S. Bill of Rights Foundation
The Woodhull Freedom Foundation

1 United States v. Arnold, No. 06-50581, 2008 U.S. App. LEXIS 8590 (9th Cir. Apr. 21, 2008).

2 "Customs keeps track of the border searches its agents conduct, including the reasons for the searches. This administrative process should help minimize concerns that gas tank searches might be undertaken in an abusive manner." United States v. Flores-Montano, 541 U.S. 149, 156 (2004) (Breyer, J., concurring).

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National Security Letters Reform Act, S. 2088
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Advocacy and Letters - Letters to Government Agencies Signed by TMA
Written by Coalition   
Tuesday, 22 April 2008

April 22, 2008 

 

Hon. Patrick J. Leahy, Chairman

Hon. Arlen Specter, Ranking Minority Member

Senate Committee on the Judiciary

224 Dirksen Senate Office Building

Washington, DC 20510

 

Re:  National Security Letters Reform Act, S. 2088

 

Dear Chairman Leahy and Ranking Member Specter: 

The Judiciary Committee will soon consider issues relating to National Security Letters.  We write to express our support for the National Security Letters Reform Act (S. 2088).  

The PATRIOT Act and Intelligence Authorization Act of FY 2004 drastically expanded the FBI's authority to obtain the business and personal records of Americans by issuing National Security Letters (NSLs).  NSLs, which do not require prior judicial approval, can be used to obtain a wide range of documents based upon vague claims that the information is merely "relevant" to a terrorism investigation.  Once the FBI acquires records with an NSL, it can keep them indefinitely, even when it concludes that the subject of those records is innocent of any crime and is not of intelligence interest. 

Undeniably, the FBI needs prompt access to some of the types of information currently acquired under NSLs, but the current method of self-policing simply does not work.  Reports issued by the Office of the Inspector General of the Department of Justice in March 2007 and March 2008 documented the drastic expansion of the use of NSLs and their subsequent abuse.  The IG’s reports also show that NSLs are increasingly used to obtain records about Americans, making reform all the more important.  The NSL Reform Act appropriately addresses the problems uncovered by the Inspector General's reports by establishing statutory safeguards and judicial oversight while protecting privacy concerns and bolstering national security interests. 

The bi-partisan NSL Reform Act includes many beneficial reforms.  First, it would limit the reach of NSLs by allowing only less sensitive personal information to be made available under this authority.  Other existing authorities could still be used to obtain the more sensitive information that would no longer be available with an NSL.  It would require the government to determine that records sought with an NSL relate to someone who is connected to terrorism or espionage.  The bill would require the Attorney General to issue minimization procedures for information obtained through NSLs, and to create a system to track their use.  It would also enhance oversight by requiring additional reporting to Congress.  The act would also establish reasonable limits on the “gag” that attaches to an NSL, requiring it to be narrowly tailored and limiting it to 30-days, extendable by a court.  The bill would also tighten the standards for court-issued orders under Section 215 of the USA PATRIOT Act (the “library records” provision) by requiring the government to show that the records sought relate to a suspected terrorist or spy, or to someone directly linked to such a person. 

We believe this bill takes significant steps toward achieving a balance between privacy and national security concerns.  We ask that the Judiciary Committee consider this legislation and report it favorably as soon as is practical.  For more information, please contact ACLU’s Michelle Richardson, This email address is being protected from spam bots, you need Javascript enabled to view it , 202/715-0825.  

 

Sincerely,

American-Arab Anti-Discrimination Committee

American Civil Liberties Union

American Library Association

American Policy Center

Association of Research Libraries

Bill of Rights Defense Committee

Center for American Progress Action Fund

Center for Democracy & Technology

Constitution Project

Concerned Foreign Service Officers

Defending Dissent Foundation

DownsizeDC.org, Inc.

Electronic Frontier Foundation

Equal Justice Alliance

Federation of American Scientists

Friends Committee on National Legislation

Government Accountability Project

Gun Owners of America

Japanese American Citizens League

League of Women Voters of the United States

Liberty Coalition

The Multiracial Activist

National Security Archive

National Lawyers Guild--National Office

OMB Watch

OpenTheGovernment.org

Unitarian Universalist Service Committee

United Methodist Church, General Board of Church and Society

U.S. Bill of Rights Foundation

 

cc:  Members of the Senate Judiciary Committee 

 

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Last Updated ( Friday, 09 May 2008 )
 
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